To get to my dad actually being diagnosed
with ALS was quite a process. That is for fucking sure. My mother thought he
had Parkinson’s. My mom is also a big fan of WebMD. I didn’t know what it was
but there was definitely something wrong. His neurologist didn’t but humored by
mother with a battery of tests. I Including an Alzheimer’s test and a Parkinson’s
test, a very expensive (with deposit for medication in the few thousand dollar
range out of pocket to schedule)]. Granted
you got the deposit back once you showed up fro the test and it was covered by
insurance. But I don’t know that many
people that have a couple to a few thousand dollars sitting around to be held
for a medical test.) There isn’t really
a definitive test for ALS. There are symptoms that sometimes present, and can present in different sequences at
different times. You can have an EMG and
nerve conductivity test done to kind of “confirm” the diagnosis. Other than that, to my understanding, the
other tests can rule out other diseases or disorders to help confirm an ALS
diagnosis. When the doctor concluded his physical exam and sat us all back
down, and said he thought it was ALS, my mom looked at me and mouthed FUCK. I
completely concurred but motioned for her to calm the fuck down and pay
attention. See, we knew what ALS was, my moms dad died from it.
This stupid rare disease hit this
family twice. My poor mother. I was too young to really be affected by my
grandfathers ALS diagnosis. I remember visiting him in the hospital. I remember
that being scary. I remember my mom being emotional which is not completely normal.
Crazy, yes, emotional, never. I remember more than anything the morning of my grandfathers
funeral. My mom was crazy getting ready in their bedroom and dad was busying
himself in the garage. I went out to my dad and asked if there was a God because
my Buddy (my grandfather died). He, without hesitation even though he wasn’t
religious and probably just trying not to upset my mom, responded with, “Of
course God is real. He’s not like the Easter Bunny or Santa”. I was 6.
I’m so
glad my mother spared him. As odd as it sounds, that is one of my favorite
memories. And really encompasses my father.
ALS sucks by the
way.
Thoughts? Comments? Questions?
Comment in the blog.
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