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So it begins

I hate ALS.  It is a horrific disease. Horrific. Amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig’s disease, is a progressive and incurable motor neuron disease that leads to paralysis, the inability to swallow, respiratory failure and finally death, usually within three to five years from the onset of symptoms. But no case is the same. There is no “common” path or progression.  Majority don’t lose mind function.  You slowly become paralyzed and can’t move or communicate but still have full brain function. Full thought function. I can not think of a worse fate. As a thinker, as a doer, as an anything, I can’t think of a worse fate.


My dad has ALS. My dad was diagnosed on August 21st, 2017. It was confirmed on August 23rd, 2017 via EMG. And reconfirmed on August 31st by an ALS clinic. My dad helped me move my house in March of 2017. Him and I carried every heavy thing my husband, daughter and I own. By the time of his diagnosis, 5 months later, he couldn’t walk without a walker. And in the afternoons, he could barely do that. My dad is a pretty prideful man, humble but prideful. He hated that walker. 

ALS sucks by the way. 

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